Monday, December 5, 2011

Come On, Dr. Harry

So frustrated with Dr. Harry! I called this morning, and his secretary had no clue. Finally Dr. Harry called me back... and I missed the call! He left a message saying that he was calling to discuss my lab results. I picked up my phone 20 minutes later and kicked myself for not having it on me. I called right back, but I have not heard back from him. You had better believe that phone will be glued to me tomorrow.

I am pretty ticked that he had my labs and did not call me until I bugged him.

Sensory:
-Pins and needles: 3
-Tingles: 0
-Dysesthetic pain: 6, whole left leg and foot, from my butt on down
-Paresthesias: 1, foot buzzing, which has happened a few times each day lately
-Numbness: 4
-Vision: 2
-Nerve pain: 7, left leg
-Hearing: 0

Motor:
-Walking: 1
-Sore muscles: 3
-Fine motor: 3
-Weak muscles: 4
-Spasticity: 4

Cognitive:
-Language processing: 3, getting overwhelmed by a lot of language coming at me. And I got a little frustrated when my words would not come out correctly and my language was disorganized. A little frustrated. Not a lot. I know that my poor brain cannot help it.
-Memory: 3
-Attention: 4, I am taking longer to realize that I spaced out or focused on something else
-Confusion: 2

General:
-Fatigue: 4
-Balance: 2, I got up and almost fell over! Luckily I fell into a wall, so harm done.
-Sleep: 5, had trouble sleeping: hot and nightmares
-Bladder: 1, yes, misbehaving again. :(
-Proprioception: 1

Emotions: Got a bit angry and frustrated today. Meh. Not terrible.

I also felt gratitude and love, to and from a somewhat unlikely source. Remember when I mentioned the experience with "Little Doll?" I ended up telling Little Doll's mother that I have MS. She is a nurse and knows exactly what this means for me. Well, she has been so kind about it since then. We have not discussed it much--professional boundaries--but she has asked how I am feeling, helped me up when I have difficulty getting off the floor for the 1,000th time at preschool (it is a parent-supported preschool), etc. Those little things are always touching. Today I did a home visit, and she gave me a big hug as I was leaving.

So remember how much your hugs and kind words can brighten someone's day. This woman's certainly did for me today!

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