Today I went to church. Yea! I like church.
I cannot believe that I am still interpreting most of the meetings. Crazy. I am not interpreting in the community, except for band and orchestra performances (they pay me to announce the names of songs and then sit there--what a gig!), which is because I totally suck at interpreting.
Sensory:
-Pins and needles: 1, haha I was about to rate this 0 until I checked in with my body... yeah, I have them right now in my left foot
-Tingles: 0
-Dysesthetic pain: 3
-Paresthesias: 1, some itches that I am pretty sure are not itching from histamine
-Numbness: 4, left foot/leg off and on--well, on when sitting, even on a well-padded chair. Thigh front problems just hit now. And I had mild tongue sensation problems again today. Losing feeling in my mouth no es muy bueno. (Yes, I totally pretended that I speak Spanish?)
-Vision: 2
-Nerve pain: 5
-Hearing: 1, darned tinnitus again this pm
Motor:
-Walking: 2
-Sore muscles: 4
-Fine motor: 3--tried to play the organ, boo. And piano, mini boo. It seems like the more I practice, the worse I get. My motor skills decline quickly. And the organ is just so much harder than it used to be.
-Weak muscles: 5, it seems like I downgrade this on days that I do not do anything strength-related, ha
-Spasticity: 4
Cognitive:
-Language processing: 3, my auditory processing suuuucks. Yeah, I had trouble understanding every single person who shared their testimony today. So?? Hm, but Sunday School was not bad. I had to focus and listen, but that was more an attention thing. And RS was fine, except again needing to focus. I suppose the fact that Sacrament meeting uses a sound system and I am two feet from the actual speaker during SS/RS might make a different. Yeah.
-Memory: 2
-Attention: 3, see above... sigh
-Confusion: 1
General:
-Fatigue: 6, I just wanted to curl up in a ball at church today. My body was begging to lie down. I vegged out for a while after church, and then I went back after the other ward was done to practice the organ. I played for about 45 minutes, which is unreasonable in my current condition, but I was in musician's trance. Like stitcher's trance--once you start, you can't stop! ;) Well, I paid for it afterward.
-Balance: 1
-Sleep: 4, went to bed a bit late and got up a bit early--not by choice! I wanted to hit the 8:00 am choir practice today. Um, I guess that is by choice. I mean, not by force, lol. Choir was totally worth it!
-Bladder: 0
-Proprioception: 1
Emotions: Someone at church asked me how I was doing while I was standing up to stretch my legs between meetings. I said that I was doing okay, that I was just trying to feel my leg again. I wasn't happy about it, but I wasn't terribly bothered. Gee, darn.
Later I went huh? I do not think I appreciated the magnitude of my response: "Trying to feel my leg again." Who says that????
Sometimes I think my emotions are blunted, or maybe I am like an abuse victim who has a new (horrible) normal. Maybe it is just adaptability. Maybe it is distance between my consciousness and the situation. Maybe it is a way to get through the day without crying!
Sadly, I did not mind the numbness I was feeling, because it was the cold numbness, which is way better than the mixed numbness and pins/needles. The cold numbness feels like ice water is being poured through me. It was not really painful, so I was feeling lucky. Yeah, definitely a new normal if a half-numb leg is "lucky."
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.