My friend from out of state canceled on me. That was disappointing. She sent flowers, which I appreciated, but it just reminded me that she's not here.
Last night I went to a church social and made two new friends. One is a nurse, and I ended up telling her that I have MS. Both of these ladies were so nice and have checked in with me today to see how I'm doing.
Today was a tough day. At work I just wanted to lie down. Good thing I work with young kids--older kids might be more than I could handle. My brain is tired, not only my body. My students today were doing work like, "What is your favorite food?" That was totally my speed.
I came home from work and tried to sleep. I'm a horrible napper but was able to sleep a little. I dreamed that I was typing something and when I went back to read it, it didn't make any sense. I was horrified at the mistakes I made... It was a very upsetting dream. I was glad it was only a dream.
I wish this were all just a bad dream.
I spoke with Dr. Gabby today. I already decided to switch neurologists and have an appointment with Dr. Ronnie on September 12. But for now I'm stuck with Dr. Gabby. She's done some things that I don't like, and I've heard bad things about her. Anyway, today I begged her for anxiety medication, and let me stop by and pick up a sample of Lexapro. If I like it, I should call for a prescription next week. And she wants to see me next week to review my test results. She said that the spinal MRIs were clear. That's good.
She mentioned me starting IVIG treatments. I googled it and found that they are two-day (5 hours each day) IV infusions. It looks like I'd need to have the first infusion in a doctor's office or clinic or something, and I would be sent home with the IV in for the second infusion. Then I'd go back to have the IV removed. I don't know how that would work out with my job... Could I go in the evening? Of course I'll have to make it work. Maybe go on a Friday and give myself the second infusion on a Saturday. I can see that my future will be filled with needles.
I think I've lost my appetite. Am I depressed?
Showing posts with label Jessie. Show all posts
Showing posts with label Jessie. Show all posts
Friday, September 2, 2011
Saturday, August 27, 2011
Go Big or Go Home
And I went big. First caffeinated drink was a Red Bull, oh boy. I just took a few sips, and it made my headache go away! Hopefully it's gone for good, but I do have the can in the fridge in case it comes back.
Yesterday I spoke on the phone with a friend from work, Candy, for over an hour. She is the only person I'm going to tell. I sure do love her. She just had a personal tragedy, so we're both in interesting places in our lives. Maybe turning points. She's considering a new career and wondering if/how God will answer her prayers about what to do. I'm so blessed that I can answer that question, because God answers my prayers all the time. I know how it's done. So I explained it to her. And of course we talked about my MS.
She is concerned that I have enough help at home, that I'm not the one doing things for everybody else. And she wanted to know how she can help me at work. She said she'll help me make sure no one finds out. We work at a super gossipy, nasty place, and I absolutely do not want those witches finding out.
I wasn't sure how else she could help me, except to remind me to pace myself. I tend to go full force (go big, see?) until I hit a wall. So I could use reminders not to expend all my energy in the morning. She was thinking she could walk the kids down the hall to my room or have an assistant do that. That's a really good idea, actually, because walking down the hall absolutely could use up the energy I need to work with the kids when we get there.
And she made me practice the phrase, "I can't do that." Some days I might not be able to do my high-energy dog-and-pony show, and she can step in.
We cried and laughed together, and it was just really nice to talk with her.
And I answered some emails asking how I'm doing. Now I've told my story in whole or in part so many times that I do know what I've said to whom.
I emailed my best friend, Jessie, who lives in another state, and just said I have MS. I suppose we'll talk one day next week. I only speak to her once a year or so, but every time we talk it's like we just did yesterday. We're just too busy with our lives to talk more often. She has a whole bunch of kids. I'm not sure how many, but I think it's 8 or 9.
I need to email another friend. I sort of raised her kids for a few years, and I'm pretty close with the oldest. I took care of that child from one month to four years of age, and now she is 11. Old enough to be hurt that I didn't visit this summer, and I always visit. She emailed me once or twice, and I told her I've been sick and can't go up there (5 hour drive) unless a friend drives me.
That's why I didn't go to the beach this year. I LOVE the beach but couldn't go because a. I was afraid I'd get hot and really sick, and b. I was afraid I wouldn't be able to get back.
I hope I can ski this year! I was planning to teach skiing, but I guess I won't. Well, we'll see how I'm feeling then. My friend from work thinks I should stop freelance interpreting and just do my full-time job and my private clients. I really need the money, but I guess it will all work out.
Yesterday I spoke on the phone with a friend from work, Candy, for over an hour. She is the only person I'm going to tell. I sure do love her. She just had a personal tragedy, so we're both in interesting places in our lives. Maybe turning points. She's considering a new career and wondering if/how God will answer her prayers about what to do. I'm so blessed that I can answer that question, because God answers my prayers all the time. I know how it's done. So I explained it to her. And of course we talked about my MS.
She is concerned that I have enough help at home, that I'm not the one doing things for everybody else. And she wanted to know how she can help me at work. She said she'll help me make sure no one finds out. We work at a super gossipy, nasty place, and I absolutely do not want those witches finding out.
I wasn't sure how else she could help me, except to remind me to pace myself. I tend to go full force (go big, see?) until I hit a wall. So I could use reminders not to expend all my energy in the morning. She was thinking she could walk the kids down the hall to my room or have an assistant do that. That's a really good idea, actually, because walking down the hall absolutely could use up the energy I need to work with the kids when we get there.
And she made me practice the phrase, "I can't do that." Some days I might not be able to do my high-energy dog-and-pony show, and she can step in.
We cried and laughed together, and it was just really nice to talk with her.
And I answered some emails asking how I'm doing. Now I've told my story in whole or in part so many times that I do know what I've said to whom.
I emailed my best friend, Jessie, who lives in another state, and just said I have MS. I suppose we'll talk one day next week. I only speak to her once a year or so, but every time we talk it's like we just did yesterday. We're just too busy with our lives to talk more often. She has a whole bunch of kids. I'm not sure how many, but I think it's 8 or 9.
I need to email another friend. I sort of raised her kids for a few years, and I'm pretty close with the oldest. I took care of that child from one month to four years of age, and now she is 11. Old enough to be hurt that I didn't visit this summer, and I always visit. She emailed me once or twice, and I told her I've been sick and can't go up there (5 hour drive) unless a friend drives me.
That's why I didn't go to the beach this year. I LOVE the beach but couldn't go because a. I was afraid I'd get hot and really sick, and b. I was afraid I wouldn't be able to get back.
I hope I can ski this year! I was planning to teach skiing, but I guess I won't. Well, we'll see how I'm feeling then. My friend from work thinks I should stop freelance interpreting and just do my full-time job and my private clients. I really need the money, but I guess it will all work out.
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