Tuesday, January 24, 2012

Still on the Steroid Train--With Double Vision

Double vision is seriously so weird. Still coming down off the steroids--rough. My vertigo was bad a few times today. Last night, my bladder decided to work again, so I got up a half dozen times. I could not sleep until around 2:00 am anyway. Who knows why. Just dumb insomnia, and I think I was too warm. I ended up sleeping two hours, getting up, two more hours, maybe another hour. I do not know how I was functional today, except that I took it easy and did not move my head quickly.

This time I have tried to surrender to the steroids. They have a big impact on me (negatively), and there is nothing I can do about that. If I decide to accept them, I am signing up for whatever comes along. Joint pain, vertigo, insomnia, and all the rest. The vision issues, ugh. The just feeling SICK. 

It is easier to ride it out this time, because I have been through it before. The first time I had steroids, back in September, I did not know what to expect. Actually, I expected them to make me feel better, and they did not. And I was not expecting to feel MUCH worse after stopping the steroids. 

Some things are worse this time around, but overall I have handled it well. I hope I have reached the peak of the symptoms now--today is the worst day so far. Last time I had steroids, I finished them on a Tuesday and had a horrible time Thursday night through Saturday. This time I finished on Sunday, so two days later... that is today. So I guess we will see how tonight and tomorrow go.

Oh, one thing I have had a lot of today and yesterday is back pain. It is weird back pain. 

Sensory:
-Pins and needles: 4
-Tingles: 0
-Dysesthetic pain: 4
-Paresthesias: 0
-Numbness: 3, uh oh, left side of tongue tingly/numb--that is new. Hopefully a one-time thing. And my legs and arms were sometimes numb or semi-numb, blah.
-Vision: 4
-Nerve pain: 4
-Hearing: 1, very fuzzy this morning, muffled. But fine all day.

Motor:
-Walking: 2
-Sore muscles: 1
-Fine motor: 4
-Weak muscles: 5
-Spasticity: 2, except for one nasty cramp on the back of my left leg/butt

Cognitive:
-Processing: 2
-Memory: 0
-Attention: 1
-Confusion: 2

General:
-Fatigue: 6
-Balance: 4
-Sleep: 8, less than five hours of broken sleep
-Bladder: 2
-Proprioception: 1
-Swallowing: 1
-A: 0
-B: 5, problematic this morning, better this afternoon

Emotions: I am working to remain centered and spiritual. 

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