My symptoms are still kind of rough, especially vision and joint pain. If anything, my vision is worse today. And I have muscle pain... and spasticity? I definitely have spasticity back in my legs, but I am not sure about my arms.
I seem to be hot a lot lately, or warmer than others around me. I have not been nearly so shaky today as the last week. I had a few bad attacks of vertigo, but just a few. Dizzy sometimes, but less than the last week. I think things are moving in the right direction.
I hate to complain and complain, but it has been really helpful having these comments when trying to reconstruct when symptoms or side effects began and ended. I am planning to send some bullet points to my neurologist and internist when all is said and done.
Alright, I am tired and hoping to sleep, so I will get to my daily data.
Sensory:
-Pins and needles: 4, both legs, also on my butt super early this morning (like 4:00 am)
-Tingles: 1
-Dysesthetic pain: 7, mostly left leg, except for the horribleness in my butt (well, the side of it--sciatic nerves) that was more like a 9 and was bilateral, keeping me up in the wee hours of the morning
-Paresthesias: 0
-Numbness: 3, some tongue problems again, as well as top of right foot and the other usual areas. Left fingertips also having some issues.
-Vision: 4, getting worse because the TV is pretty blurry now. I can make out the closed captions, which are very large, but they are hard to read. And oddly, the pictures on the wall look 3D.
-Nerve pain: 6, mostly left upper back leg--sciatic nerve
-Hearing: 0
Motor:
-Walking: 4, still pretty stiff from the steroids, not sure how much from spasticity, balance, etc. Lots going on.
-Sore muscles: 8, backs of legs (especially tendons behind knees and left hip), backs of arms/shoulders especially right
-Fine motor: 3
-Weak muscles: 5, right weaker than left, at least for my arms. I just tested and can lift my laptop with my left arm but not my right. My legs seem better, though. Maybe because I rested them so much?
-Spasticity: 7, way on up :(
Cognitive:
-Processing: 1
-Memory: 0
-Attention: 0
-Confusion: 0
General:
-Fatigue: 5
-Balance: 4, especially hilarious in the dark
-Sleep: 6, about 6 hours
-Bladder: 0? Did not pay attention
-Proprioception: 2
-Swallowing: 0
-A: 0
-B: 0
Emotions: Mostly okay. A few grouchy moments. Yesterday I would have had something to say--I cried several times. I probably need to break down and cry, let out some stress from the week. I am probably disappointed that the steroids have gone the way they have. I did hope for better this time.
-Tingles: 1
-Dysesthetic pain: 7, mostly left leg, except for the horribleness in my butt (well, the side of it--sciatic nerves) that was more like a 9 and was bilateral, keeping me up in the wee hours of the morning
-Paresthesias: 0
-Numbness: 3, some tongue problems again, as well as top of right foot and the other usual areas. Left fingertips also having some issues.
-Vision: 4, getting worse because the TV is pretty blurry now. I can make out the closed captions, which are very large, but they are hard to read. And oddly, the pictures on the wall look 3D.
-Nerve pain: 6, mostly left upper back leg--sciatic nerve
-Hearing: 0
Motor:
-Walking: 4, still pretty stiff from the steroids, not sure how much from spasticity, balance, etc. Lots going on.
-Sore muscles: 8, backs of legs (especially tendons behind knees and left hip), backs of arms/shoulders especially right
-Fine motor: 3
-Weak muscles: 5, right weaker than left, at least for my arms. I just tested and can lift my laptop with my left arm but not my right. My legs seem better, though. Maybe because I rested them so much?
-Spasticity: 7, way on up :(
Cognitive:
-Processing: 1
-Memory: 0
-Attention: 0
-Confusion: 0
General:
-Fatigue: 5
-Balance: 4, especially hilarious in the dark
-Sleep: 6, about 6 hours
-Bladder: 0? Did not pay attention
-Proprioception: 2
-Swallowing: 0
-A: 0
-B: 0
Emotions: Mostly okay. A few grouchy moments. Yesterday I would have had something to say--I cried several times. I probably need to break down and cry, let out some stress from the week. I am probably disappointed that the steroids have gone the way they have. I did hope for better this time.
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