Sunday, January 22, 2012

Steroids Have Not Killed Me Yet

That help at church was so helpful. I love that I can come home and not collapse for hours. It is seriously such a blessing!

I hate doing PT homework! What a pain in the neck. One more day... can't wait to be done.

PT Homework
Asleep at 9:45. Woke up around 1:00? went back to sleep. Woke up at 4:00. Got out of bed at 5:10.

5:30
F 9, S 5, p 6, v 1, c 2, LLW 6, RLW 4, law 2, raw 2, d 3 (lights still off though)
Laid in bed 10 minutes, got out of bed, got my laptop from under bed, walked 25 ft to couch. Sat on couch and did FD on phone, read scriptures on phone. Back to bed at 5:28. 



Slept about briefly around 7:00, then about 8:15-8:45.

9:30
F 7, s 5, p 8, v 4, c 2, leg w 7, law 1, raw 5, d 2
Laid in bed until 9:15. Got up, walked 20 ft, picked up laptop and carried it 12 ft then down stairs then 6 ft. Sat on couch using laptop. Back hurts!



10:00
F 4, S 2, p 7, v 3, c 1, leg w 6, arm w 3
Sat on couch and blogged. Took 
gabapentin, ala, alc, vit b12, lactase. Ate breakfast.

10:30
F 7, S 6, p 3, v 4, c 1, leg w 5, law 2, raw 6
Sat on couch and wrote email 15 min. Walked 6 ft, up stairs, 10 ft, potty. Walked 14 ft, sat on bed to do FD on phone and drink water. Walked 15 ft, stood to shower. Arms up to wash hair and face. 



11:00
F 6, a 3, p 6, v 4, c 0, leg w 6, law 2, raw 6, d 1
Finished shower. Stood to dry off and collect goods. Sat to read email and do FD while putting on a variety of facial and body products. Went downstairs, walked 20 ft, stood briefly for a picture, walked back upstairs to bathroom. Brushed hair, put in products (arms up). Sat on landing and rested arms a minute. 


11:30
F 3, s 5, p 4, leg w 2, law w 1, raw 4, d 0
Sat and used both arms to dry and brush hair. Stood to fix hair (less than five min). Walked 20 ft, sat at vanity for makeup and music. Went potty. Took 800 mg ibuprofen. Walked 16 ft. Stood to choose clothing and dress. Back to vanity for makeup.

12:00
F 6, s 3, p 7, v 4, c 0, weak w 6, law 1, raw 8, d 0
Finished makeup--arms up a lot. Potty. Downstairs, used laptop, sat on steps to put on shoes. Upstairs got coat. Downstairs got church bag and purse. Walked 120 ft to car. Sat and did FD in phone.  Took cranberry.



12:30
F 4, s 0, p 4, v 4, c 1, leg w 3, law 1, raw 5
Rode 15 min. Walked 200 ft. Sat and participated in choir practice.

1:00
F 7, s 1, p 6, v 4, c 1, leg w 5, law 1, raw 5
Choir practice, walked 30 ft, sat and wrote a note, chatted 5 min in ASL and English

1:30
F 7, s 3, p 5, v 4, c 0, leg w 5, law 2, raw 6
Sat and interpreted ASL.



2:00
F 5, s 0, p 4, v 4, c 3, leg w 4, law 4, raw 7
Sat and supported learning interpreter 20 min. Interpreted 10 min.

2:30
F 3, s 2, p 2, v 3, c 2, leg w 6, law 5, raw 7
Sat and interpreted 10 min, stood chatting 2 min, walked 300 ft, sat and chatted 5 min in ASL and English. Sat listening to class as supporting learning interpreter. 



3:00
F 3, s 3, p 7, v 4, c 2, leg w 7, law 2, raw 5
Sat and supported learning interpreter. 



3:30
F 3, s 4, p 8, v 4, c 2, leg w 5, law 2, raw 3
Sat and supported learning interpreter. Took gabapentin at 3:10. Chatted ASL 5 min. Break 5 min. Sat and interpreted.

4:00
F 5, s 4, p 5, v 4, c 3, leg w 3, law 3, raw 5, d 2
Sat and interpreted ASL. 


4:30
F 5, s 4, p 4. V 4, c 3, leg w 8, law 0, raw 6
Sat and chatted five min, stood and chatted a minute, walked 50 ft, rode home 10 min. Walked 120 ft. Stood chatting 3 min. Took off coat etc standing. 



5:00
F 7, s 1, p 1, v 4, c 3, leg w 6, law 0, raw 5, d 4
Walked 15 feet, sat at computer briefly. Got up and walked 12 ft, up stairs, 12 ft. Bathroom. Walked 15 ft. Changed clothes standing up. Hung up skirt, etc. Tidied up. Walked downstairs. Walked 25 ft. Sat on floor, conversed in ASL. Got up and carried full mugs 15 ft. 


5:30
F 8, s 3, p 2, v 3, c 2, leg w 7, law 1, raw 6, d 3
Walked looking for remote. Sat/ reclined on couch eating and watching movie, some ASL use. Took prednisone, vit d, cranberry, milk thistle. 



6:00
F 4, s 5, p 7, v 4, c 2, leg w 7, law 1, raw 5, d 3
Took protonix 5:45. Sat on couch watching movie. Rested head. Some ASL chatting. Some cell games. 



6:30
F 6, s 6, p 4, v 4, c 2, llw 6, rlw 4, law 1, raw 3, d 1
Built a fire. Carried wood 15 ft back and forth. Walked 35 ft. Sat on couch watching movie and using laptop. Walked 30 ft. Sat on couch watching movie and using laptop.



7:00
F 3, s 7, p 5, v 4, c 0, leg w 5, law 0, raw 3, d 0
Sat on couch watching movie and using laptop. Walked 30 ft for snack.



7:30
F 4, s 6, p 7, v 4, c 1, leg w 6, law 0, raw 3, d 3
Walked 25 ft, stoked fire. Sat on couch using laptop and explaining in ASL.

8:00
F 5, s 6, p 4, v 4, c 2, leg w 6, law 1, raw 5, d 2
Sat on couch using laptop and explaining some in ASL.



8:30
F 6, s 6, p 5, v 3, c 2, leg w 5, law 0, raw 3, d 2
Sat on couch using laptop. Walked 15 ft plus 2 steps up and down to bathroom, back same way.  Sat on couch, chatted in ASL.

9:00
F 4, s 5, p 4, v 4, c 2, llw 5, rlw 6, law 1, raw 5, d 0
Sat on couch working on laptop.



9:30
F 5, s 4, p 4, v 4, c 1, leg w 6, law 0, raw 4, d 2
Sat on couch writing email.


Daily Data
Sensory:
-Pins and needles: 1
-Tingles: 1
-Dysesthetic pain: 6
-Paresthesias: 0
-Numbness: 1
-Vision: 4
-Nerve pain: 2
-Hearing: 0

Motor:
-Walking: 4
-Sore muscles: 2
-Fine motor: 3
-Weak muscles: 6
-Spasticity: 3

Cognitive:
-Processing: 2
-Memory: 1
-Attention: 1, had a lot of difficulty shifting my focus 
-Confusion: 0

General:
-Fatigue: 6
-Balance: 3
-Sleep: 4 (6 hours, woke up around 4:00. I did get in another half hour around 8:00.)
-Bladder: 3
-Proprioception: 1
-Swallowing: 0
-A: 0
-B: 6, took something

Emotions: Fine. I had a relaxing morning getting ready for church. And I was happy at church.

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