Good But Hard

I got a lot of rest this morning, because I was so darn tired. When I felt worn out, I rested. So it took me like two hours to shower, get dressed, do my hair and put on a little makeup. Oh, well. I had nothing else to do this morning. Or if I did, I forgot!

PT Homework
Sleep: Woke up at 5:20 (about 7 hours of sleep), tired but could not sleep more. Took Tylenol at 5:25. Lights on at 6:40.

7:00
F 7, s 5, p 6, v 3, c 1, leg w 3, arm w 3
Got up to get my laptop from under the bed. Sat on bed and read email. Headache, not feeling well. Cold. Took Aleve. Sat on bed and blogged, typed email.


7:30
F 2, s 3, p 5, v 2, c 2, leg w 5, law 1, raw 2
Some ASL chatting. Walked around living room, kitchen total abt 60 ft, walked upstairs. Ran bath, walked 8 feet to landing, sat and typed on phone while waiting. Got up and used bathroom. Stood to undress, sat in bath.

8:00
F 1, s 0, p 0, v 3, c 2, leg w 0, law 0, raw 1
Sat in bath (way too cold in here!)

8:30
F 2, s 1, p 3, v 4, c 2, leg w 4, law 1, raw 5
Got out of bath, stood to dry. Stood to dress. Walked 10 feet, downstairs, 8 feet. Sat on couch, used laptop. Chatting in ASL. Sat playing phone games. Took gabapentin, vit B12, acetyl l-carnitine, alpha-lipoic acid, lactase. Used ASL to bless food.


9:00
F 3, s 3, p 4, c 1, leg w 4, law 0, raw 5
Sat on couch: ate, chatted in ASL, played phone game. Walked 5 feet, upstairs, 8 feet, bathroom. Walked 8 feet, sat on bed. Stood on bed and leaned to see out window. Walked 12 feet, downstairs, 5 feet. Sat on couch, talked on phone holding it in right hand. 


9:30
F 6, s 4, p 2, v 4, c 2, leg w 5, law 1, raw 5
Sat on couch, talked on phone. Conversed in ASL. Played phone games. Walked 6 ft, upstairs, 12 ft, bathroom. Walked around getting ready for shower, total about 40 ft.


10:00
F 9, s 2, p 3, v 4, c 2, LLW 3, RLW 6, law 1, raw 6, d 4
Stood to shower. Arms up to wash hair and face. Stood/bent to shave. Stood to dry off. Stood for eye cream, etc. Walked 4 ft, sat on landing for moisturizer and body lotion. Stood in bathroom to put away lotions and towel, use deodorant. Walked 12 feet, put on underwear. Laid on bed five minutes. 


10:30
F was 10 at last check in
F 6, s 1, p 5, v 4, c 1, leg w 4, law 0, raw 7
Laid on bed eyes closed 20 min. Went potty. Laid on bed playing phone game. 


11:00
*took Tylenol at 10:50
F 5, s 2, p 4, v 4, c 3, leg w 3, law 2, raw 6, d 2
Sat on bed doing FD and planning what to do next. Quick phone call (r arm up). Walked 6 ft, stood to chose clothes and dress. Walked 15 ft, stood to use hair products. Sat on landing to blow dry and brush using both hands. Tried to lean arms on legs bc feeling weak. Went potty. Stood to fix hair. Walked 12 ft, sat at vanity to begin makeup. 


11:30
F 2, s 2, p 4, v 4, c 1, leg w 3, law 2, raw 6, d 3
Sat at vanity, sent email on phone, slowly did makeup. Tried to lean arms on knees or table. A little ASL chat. 


12:00
F 5, s 0, p 2, v 4, c 2, leg w 5, law 2, raw 5
Walked 15 ft, went potty. Walked 12 ft, sat on bed to decide what to wear. Too tired to get up. Friend came, chatted in ASL. Trying to push fluids.

12:30
F 7, s 1, p 3, v 3, c 2, llw 6, rlw 4, law 1, raw 4, d 2
Sat on bed thinking what to wear. Walked back and forth 7 ft to closet 3-4 times with clothes. Walked 12 ft, went potty. Walked 8 ft, down stairs, 25 ft, back up stairs with toilet paper. Went potty. 


1:00
F 4, s 2, p 2, v 4, c 1, LLW 4, RLW 3, law 1, raw 4, d 2
Walked downstairs. Tidied up living room. Sat on couch collecting pills for pm. Played phone game. Brief ASL and English chats. 


1:30
F 4, s 1, p 2, v 4, c 3, LLW 4, RLW 3, arm w 3, d 2
Sat on couch playing game and using ASL. Went to kitchen for snack. Went upstairs for potty. Sat on couch. Walked around a bit, got snack. Stood and chatted a minute. Went out with friend. 


2:30
F 3, s 0, p 2, v 4, c 2, weak 4
Went out with friend for long lunch.

3:00
F 5, s 0, p 2, v 4, c 2, weak 4
Still at lunch, sitting in booth

3:30
F 8, s 1, p 2, v 4, c 1, weak 5, d 3
Finished lunch, bathroom, riding in car


4:00
F 6, s 4, p 3, v 4, c 2, weak 5
Rode in car to DC

4:30
F 8, s 4, p 7, v 4, c 3, weak 6
Walked 500 ft into building, up two flights stairs, changed clothes, sat, stood 5 min.

5:00
F 8, s 2, p 4, v 3, c 2, weak 4
Walked 200 ft, up in elevator, walked 300 ft holding friend's arm, sat and chatted in ASL and English, walked 40 ft, sat and waited to watch movie.

5:30
F 8, s 4, p 2, v 2, c 1, weak 2
Sat watching movie.

6:00
F 7, s 2, p 7, v 1, c 1, weak 2
Sat watching movie. Took immodium.

6:30
F 3, s 1, p 7, v 1, c 1, weak 2
Sat watching movie

7:00
F 2, s 1, p 5, v 1, c 1, weak 3
Sat watching movie, got up and stood 7-8 min chatting, walked 70 ft, sat on couch chatting

7:30
F 7, s 2, p 6, v 3, c 0, weak 6
Walked 200 ft, changed clothing, walked 400 ft, sat on couch chatting five min. Walked 200 ft holding friend's arm. 


8:00
F 4, s 1, p 4, v 4, c 1, weak 6
Walked 80 ft, stood ten min, carried plates. Took prednisone, cranberry, milk thistle, vit d, lactase. Chatted English and ASL.

8:30
F 6, s 3, p 5, v 4, c 1, weak 5
Sat and ate dinner. Walked 80 ft holding friend's arm. Chatted in English and ASL. 


9:00
F 9, s 4, p 4, v 2, c 1, leg w 8, arm w 6
Rode home 15 min. Walked 30 ft across snow, 40 ft on sidewalk. Upstairs, changed clothes, sat on bed chatting in ASL.

9:30
F 9, s 5, p 5, v 2, c 2, leg w 8, arm w 5
Five min chatting ASL. Bathroom. Brushed teeth sitting on bed. Stood to wash face. Walked back to bed, sat and blogged. Lights out at 9:30.





Daily Data
Sensory:

-Pins and needles: 2
-Tingles: 1
-Dysesthetic pain: 6
-Paresthesias: 0
-Numbness: 1
-Vision: 4
-Nerve pain: 3
-Hearing: 1

Motor:
-Walking: 5, between the MS stuff and the stiff steroid joints
-Sore muscles: 1 (pretty sure tons of Aleve and Tylenol helped)
-Fine motor: 3
-Weak muscles: 6
-Spasticity: 2 (I wonder if Aleve helps? Or lots of rest?)

Cognitive:
-Processing: 2
-Memory: 1
-Attention: 1
-Confusion: 0

General:
-Fatigue: 8
-Balance: 4
-Sleep: 2 (7 hours--absolutely not enough but I could not sleep once I woke up)
-Bladder: 3
-Proprioception: 1
-Swallowing: 0
-A: 0
-B: 7

Emotions: Up and down. It has been a rough few days. I saw my best friend of I don't even know how many years, which was good but hard. Life is good but hard. Things were hard with my friend, because we did not get enough time to talk, and now I miss her a lot.